To find a cure for what ails her, Malina Woodbury is taking matters into her own hands.
The 9-year-old, from New Lebanon, N.Y., has tirelessly raised research funds for Neurofibromatosis Type 1, a genetic disorder that has left one of her legs severely bent. And if she has her way, the disorder will soon be a thing of the past.
"I just wanted to find a cure so other kids don't have to suffer with it[1] ," Malina told News 10. "When I get older, if they find a cure, hopefully my kids won't have to suffer with it either."
According to Johns Hopkins, symptoms of NF1 can include[2] tumors and glaucoma, in addition to bone malformations.
Malina's charity brainstorming has led to participating in annual walkathons, a 5K through Epcot Center, and hosting tea parties, her mom, Alicia, told The Huffington Post. The girl has received thousands in donations.
Her latest venture is creating earrings[3] , which she sells for about $5. Half of the proceeds go to the Children's Tumor Foundation, and she spends much of the rest on supplies and to help a family friend with cancer.
She's raised $1,800 since starting her earring venture in July.
"She is an amazing 9-year-old with a heart of gold!" her mother said.
Those who would like to purchase Malina's earrings can visit her "Malina's Earrings 4 NF" Facebook page[4] .
References
- ^ find a cure so other kids don't have to suffer with it (www.news10.com)
- ^ symptoms of NF1 can include (www.hopkinsmedicine.org)
- ^ creating earrings (www.facebook.com)
- ^ "Malina's Earrings 4 NF" Facebook page (www.facebook.com)
- ^ Send us a tip (www.huffingtonpost.com)
- ^ Send us a photo or video (www.huffingtonpost.com)
- ^ Suggest a correction (www.huffingtonpost.com)
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